“Reality leaves a lot to the imagination.” ~ John Lennon
Eight hours at work. One hour in traffic. You want to go to the office holiday party. Your body says you are too tired. But you go anyway. You are young. It’s Friday night. Just got paid. Money already spent on that dress and those boots.
I see you got heels. Should have worn flats. But you are newly diagnosed. Just a rookie. How are you to know.
The closest parking lot is full and valet cost too much. So, you park down the street. After walking three blocks you finally make it to the hotel lobby. A sign in the atrium says the festivities are upstairs. But the elevator is out of order. A thin staircase guides you to the second floor. Wall walking up the stairs. You make it to the next level. Everyone is happy to see you. Old friends and new. But tonight, your best friend will be the closest chair.
Exhausted. You plop down and sink into a nearby leather recliner. Finally giving that foot drop a rest. Right hand grips the chair for balance.
Small talk dominates every conversation. A broken smile glued to your face. Spending most of the night in your own head. Mind on your circumstance. You ask friends to bring you drinks and small bites. They all gladly hunt down the requested tiny sausages and rum & coke. Everything would be perfect if they could also somehow bring the restroom to you.
While you are fighting to stay awake, the makeshift dance floor is lively and full. Everyone is mingling and strolling about. But you don’t dare move. You begin feeling alone in a party filled with people. Not dancing with tears in your eyes.
Glancing around, you notice a peculiar person staring at you from across the room. She is sitting in a chair just like you. Your eye sight is strained but still you recognize the pain in her face. It’s the same as when the doctor’s words changed your life. An overwhelming sadness.
You decide to give a welcoming hello wave. But you stop. You take a pause. You see it’s not another person. It’s your reflection mimicking you from a wooden full-length mirror propped against the wall.
You say to yourself. Is that really me? You realize. I realize. I have become a stranger to myself.
~2006
Hi, Nicole!
Thank you for sharing such a personal perspective of living with MS. You captured a lot of the small details that many of us might not be aware of. I will admit that you surprised me at the end. I was not expecting the other person to be your reflection.
In case the first comment doesn’t get through due to containing a link then here is what I want to ask MS aware individuals.
Are you familiar with this new theory on MS?
It says how one believes the universe is guided or not guided, affects the way his body cells are guided or not guided therefore by his or her nervous system…… anyway you can read it on the link provided
Nicole you are beautiful and very brave ❤️. I can only hope that I could be the brave woman you are! I know that I will meet the time of needing a wheelchair and assistant. It literally scares me like nothing else ever! Giving me the worst thoughts! As I battle this monster alone every day absolutely NO support.
I am so proud of your strength as a black woman as a person period you are a Warrior! Your words bring tears to my eyes because they touchy heart and are my own reality also. Also real and sad for me because I do have 3 adults daughters as well as family members within the exact city and state within driving distance.
I say this to confirm how across the board MS is often underestimated.
I appreciate your words here and how brave you are telling you story publicly you will be the motivation for SO many people!
Thank you very much
Wishing you the best and all of your hearts’ desires!
Brandy
I’m listening, feeling and remembering
Nicole,
I so enjoy your posts about how physically and especially emotionally challenging it can be to be out in the world. We have to choose what we will attend and who will be there to protect us from the ignorant. There are so many Guardian Angels on Earth who care and protect us. ❤️❤️
Agree, felt every movement/non-movement…
I hear your words and know all to well the internal pain of this exact type of event. MS has a knack of removing the joy from a party or similar outing. It is so much simpler and less trauma to stay home. That is a slippery slope to self isolation to preserve your sanity, energy ,,, but you bravely chose to go to the party knowing full well the effort required just to get there let alone remain there. Don’t give in yet …. fight it as long as you can … you look gorgeous by the way and there in lies the problem …. MS IS INVISIBLE until you have a stick or walker or a wheelchair …. don’t become that stranger yet …. my motto use to be ‘move it or lose it’ but 25 years in I now selectively pick my battles and ‘move forward gently’ ….
Wow! I wish I could articulate my feelings as well as you do. Thank you
Very powerful writing Nicole. Thanks for sharing.