“I don’t like to give advice. I like to give people information because everyone’s life is different, and everyone’s journey is different.” ~ Dolly Parton
All the decisions I make in my battle to live a normal life are not always successful. Sometimes my choices don’t work out. But I’ve been living with multiple sclerosis long enough to know what works best for me in my case.
Despite my many years of experience, people constantly give me advice. I receive dozens of healthy living suggestions from friends, acquaintances and strangers. Multiple emails, text messages, and social media comments litter my in-box. The variety of statements range from helpful to annoying.
Here are a few.
“Maybe if you exercise more, the MS would subside. I had cancer. Then I started working out four times a week and now I’m in remission.”
“Sleep is the key. If you go to sleep earlier, you will not be so tired during the day.”
“Doctors are crooks! Why do they have you on so much medicine? Since I was diagnosed with MS, I have never taken any prescription drugs or listen to any doctor. And I have not been sick in three years”.
“I can relate to what you are going through. My coworker’s friend’s brother has multiple sclerosis. He stopped eating carbs and is doing great. Maybe you should try that.”
I’m sure most of these recommendations are coming from a good place. People are just trying to help. But sometimes it’s just not that simple.
With MS, there are some common indicators like fatigue and brain fog. Almost everyone living with this ailment has some experience with these symptoms. But the effect and severity fluctuate in each person.
Unfortunately, I am one of those people who has been significantly affected by MS. So, nothing is simple. There are no easy answers. There are no skipping doctor’s appointments. There are no changing diets after reading an article. I have to follow a detailed plan just to have enough strength to make it through the day.
In the past, when I got unsolicited guidance I would get upset. Reading and hearing the comments made me feel like I was contributing to the advancement of the disease. It made me so angry. So disappointed I wanted to smash something.
That was then.
Today, not much upsets me. I guess I’ve become less uptight after answering questions and receiving advice for 20 years.
I realize, when viewing my situation from a distance, everyone has all the answers. But life, especially life with multiple sclerosis, isn’t that simple.”
Why keep making humans suffer greatly just to get profits annually for medications that don’t work. I’m glad that herbal remedies are gaining so much awareness and many people are getting off medications and activating their entire body system with natural herbal remedies and they have become holistically healed totally, It’s also crucial to learn as much as you can about your diagnosis. Seek options: ( worldrehabilitateclinic. com ).
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Four years ago, I went numb from the waist down. After quite a few MRI’s, spinal tap, I was diagnosed with Multiple Sclerosis. I was on Avenox for almost 2 years, i had 1 year of monthly steroids IV, had to stop due to hip pain. Through my physiotherapist i learnt about a MULTIPLE SCLEROSIS HERBAL TREATMENT from K.H.C (Kykuyu Health Clinic) and their success rate with the treatment, i immediately started on the MS treatment, i experienced decline in major symptoms including hand tremor, back pain, difficulty walking, muscle paralysis and weakness, uncomfortable tingling and burning, fatigue, urinary retention,double vision, slurred speech difficulty swallowing, numbness. Visit www. kykuyuhealthclinic. com. I knew that a positive attitude is everything and to just believe, I’m in control of my life again….
Hi Nicole, I can relate to your frustrations. This Virus isolation is a challenge to but we are strong women and will make it through. One thing MS has taught us is to survive the hard stuff. It’s hard to stay on the sunny side right now with the continuing world news and the devastation of lives this virus has caused. I am going to try to remind myself every day of the blessings in my life and the gratitude for all the heroes who are on the front lines. I appreciate the kindness people are extending to me and others. I appreciate people checking up on me and those who stay in touch with messages. I appreciate those who try to brighten my day with a smile or a kind word. It’s these little things that will get us through. Peace does not mean to be in a place where there is no trouble or fear, it means to be in the midst of those things and still be calm in your heart. May God bless and keep you safe. Rosemary check out my ms blog at friendsunitedms.com
Thank you for continuing to share your journey and the wisdom that it has brought along with the struggles. I do think eople mean well and 10 years into my MS journey I better understand that the disease takes such different paths in different people. Finding how best to cope is a process complicated by so many factors. I’m with Dolly–keep sharing and thanks for sharing information you have found from your journey,
It HAS been a long time but I’m always happy to see your posts and appreciate you and how you can put feelings into words.
The kicker I have a friend who said I should go to a neurologist cause it could be a problem in my brain.All that other advice I’ve also heard. Good article thank you.
So true my friend
Nicole,
Sometimes people just have to Give you their opinion and it helps to laugh about it. I appreciate your posts and hope that others will stop with the advice while listening to you !! God Bless You and your family!
Very well said Nicole. People want to explain (I really mean control) what they don’t understand so they latch on to any idea/answer they can find without thinking that everyone is different and not all things work for all people. Stay strong my sisterfriend and continue to do you.
great article!
I can fully relate to this blog and all the responses. Well stated.
A great article and one I can relate to wholeheartedly. I remember you and I are the same age and were diagnosed the same year. Unfortunately, I have received most of the “pieces of advise” you listed. I believe at heart most people are kind and are coming from a place of wanting to help. When people don’t understand something, I think our nature is no search for answers. People who do not live with MS can never understand what it is like and how nothing works for everyone. I now tend to smile and say thank you while my inner voice says “you know nothing.”
Thank you for your post. Glad you have moved to a place where you can let that stuff go. Not worth the energy to tell people they are wrong.
Christine
Wonderful comment and so true to life, everyone wants to offer help to do something but little do they know how confusing they can make life for someone with MS. You have been such an example of courage in the face of the daunting effects of MS. Need I say more. You are also a very gifted writer.
Wonderful article. Glad to hear your voice. Is it just me, or has it been a long time?
To me It is very bad what Big pharma are doing, why keep making humans suffer greatly just to get profits annually for medications that don’t work. I’m glad that herbal remedies are gaining so much awareness and many people are getting off medications and activating their entire body system with natural herbal remedies and they have become holistically healed totally, It’s also crucial to learn as much as you can about your diagnosis. Seek options: ( worldrehabilitateclinic. com ).