I don’t know how I would be able to manage this horrific disease if I didn’t have so many beautiful people in my life. I receive so much love and support and I would like to thank my family, friends, and Internet buddies for all their encouragement and assistance. I wrote these words especially for you.
You always see the smoke before the fire
When my spirits are down you lift them higher
You remember for me when I forget
You steady the needle before you inject
You talk for me when I can’t speak
And hold me up when I am weak
You stand for me when legs will not
Just hearing your laugh makes the pain stop
You’re my best friend, my shinning star
When I need help you’re never too far
You say you understand when I know it’s a lie
But I appreciate your empathy it helps me get by
You still ask my opinion when a decision is made
Even though my past judgments should make you afraid
You’re always there anytime of day
When I reject everyone you come anyway
I hear you cry when you think I’m not there
You carrying my burden just isn’t fair
Despite all my moaning, complaining, and strife
You still keep me in your life
This disease is so very hard to live with alone
You have embraced when most would disown
Thank you family and friends for all that you give
I will be forever grateful for as long as I live
This is so beautiful and exactly the way I to am fortunate to feel about my family and friends. I maybe shouldn’t ask but I have to if you understand. Would it be possible for me to have permission to post this on my Facebook page as well as another MS site? I would love to share this with my family and friends and MS survivors. This is just so beautiful and honest and how so many of us feel that I with I could write it in the Heavens for all to see!!
Careta, Sure! I would be honored and thanks!
Very well done.
Even though I am agnostic, I have said prayers with my daughter every night for years, and we always end saying something we are thankful for from the day we just lived. I love when she was asked to describe some of the cool things you do with dad, and amongst her quick list was “pray.” With all of the medical drama in our family life, I think taking time each day, no matter how hard it has been, to be thankful helps put life in a perspective from which it is easier to be content.
Say something often enough and we begin to believe it. I have a ceramic snowman which sits above our kitchen window which says, “Say it with me, I love snow.” I won it a couple of years ago, and I put it there because my wife hates snow…but the snowman makes her laugh. Think positive thoughts. Much we take for granted as we pass by in life is beautiful.
Hi Nicole
I don’t remember how I got to your blog but I am glad that I did. Many times I have expressed these feelings to my wife and son. As you know it is hard to keep all your feelings in check your words are wonderful.
Rick
Rick, Thanks so much.
That was absolutely beautiful Nicole, thank you for sharing. You have expressed the way I feel so well.
Paula,
Thank you for reading. I wrote it for people like you who write comments that keep me going.
What can be said but Amen. Even though my spouse and I divorced after 30 years of marriage, the final 3 of which included my MS diagnosis, I am still grateful for the support and care I’ve received. Living alone with MS and a broken heart stinks yet I’m still mobile and I refuse to let this disease or my struggles in life get me down and you have provided much of the inspiration needed to maintain such an attitude. So than you for the poem and your invaluable work!
Sincerely,
Tim
Tim, Thanks.Sounds like your ex doesn’t know what she’s missing.
Beautiful poem Nicole 🙂
Debby, Thanks for reading!
That is a beautiful poem. I read it to my husband. You captured my feelings and thoughts about my husband. I hate that he has to be a caregiver but if the situation was reversed I would do the same for him. We have been married 31 years. Again, I really could relate to your poem and I am grateful for reading it.
Without fail, u have again put my thoughts in to your words!
Beautifully written, Nicole! You should print it up, frame it, and sell it!!
Peace,
Muff
How fortunate you are to have so much support, both emotional and physical. That is something thing I lack. Especially from the person who should be most supportive, the man I married and dedicated my entire life to. When I was healthy, I supported him every way humanly possible – through his “teen years” that lasted into his forties. I supported him financially while he lived the life of someone with not a care in the world. I supported him emotionally, and in every other manner. Now, as my body fails more rapidly than ever, when I need more help than I have ever needed before, my husband seems to become more and more enraged at me. Not a day goes by that he does not rail at me until he becomes hoarse, about how little help he gets from me. Already I have lost all movement in my legs. Now my eyesight is failing and I am losing the use of my hands, especially the right. One side of my face is slack and I must use my hand to blink one eye – otherwise it stays open. I am terrified at what the future holds, not only for me but for my two young children – and even my service dog who trusts in me for her very life.
BEAUTIFUL!!!!!!!!!!!!!!!!!!!!
Lovely piece Nicole. Great reminder for those of us who are fortunate enough to have great family and friends who help us navigate life with this health challenge. All the best to you and yours!
Nicole, That is just BEAUTIFUL!!!!
Very nice!
Thank you, and I will be forever grateful to you for your wisdom, kindness, and willingness to share yourself with us. Wonderful poem.
Absolutely LOVE this poem Nicole and I am not much for poetry usually. You have expressed these emotions very well. For me, I especially appreciate the line that starts “You say you understand……” Great!
That is just beautiful! Thank you fr sharing it with me 🙂
Beautiful words .. so moved by them I forward your thoughts and words to my friends and family as I don’t think I could have said it better! Been following your blog for the past year. I always look forward to reading them, they inspire me greatly as someone also living with MS here in Sydney Australia
Amen are the only words that can be said. You have read my heart and soul. KimC