Pleasure And Pain

Without suffering, happiness is not fully appreciated.

When I was first diagnosed, I remember learning about MS from textbooks and what I found online. Now I rarely search for information because all I need to know is right in front of me. It is always here. MS is with me when I wake in the morning, when I go to bed at night and all the time in between.

MS sometimes can bring me to my knees. I don’t mean from pain I just mean from the mind and body controlling aspect of the disease. Sometimes it’s as if MS has become my husband and I am its dutiful wife. When MS tells me it’s time to sleep, I go to sleep. I sit down because MS says it’s time to take a break. MS is always telling me what to do. The worst part is when I defy MS by making my own choices or when I refuse to listen, I usually pay the price with crippling symptoms.

I want to live above the clouds.

There is an idiom that says, “There is no pleasure without pain”. Many philosophy scholars have pondered, “If one never knows suffering how can one ever know happiness?”

If it is true that without suffering and pain happiness is not fully appreciated, we with MS must have a blissful future ahead of us.

Author: Nicole Lemelle

My name is Nicole Lemelle. I am a writer, activist and a person living with Multiple Sclerosis. I created My New Normals to educate those who do not understand MS, reassure people with similar plights and inspire everyone to seize command of their lives.

27 thoughts on “Pleasure And Pain”

  1. Nicole,
    It was nice to see you at the dinner forTecfidera. Are you taking it? I will start as soon as my insurance company decides to approve it. I really like your blog. I do read it. I don’t why I’ve never replied before. Keep on blogging.
    Take Care,
    Therese

  2. Hi Nicole,

    I am a holistic nurse. I have been reaching out to a few with MS to get some insight. Recently the Koreans filmed me and a guy I am treating (he has slow growth brain tumor, was sent home to die, decided he did not want to)

    He is using the water cures protocol to end his cancer. While they were interviewing us, they also interviewed Frank. He got out of his wheel chair and ended his MS in 2000. I think he is in his late 60’s now.

    He ended his MS with the water cures.

    Have you heard of this? Have you tried it and if so, what was the outcome? If you need any more information, please contact me.

    http://www.watercures.org/multiple-sclerosis-alternative-therapy.html

    http://www.watercures.org/water-cure.html

    Jonathan Steele, RN
    823 Brook Street
    Scranton, PA 18505-2428
    570-468-0083

  3. I really look forward to your blog. Thanks for making a lil spot of sunshine in my day…even if it’s not the best of days, it’s nice knowing someone out there understands and is willing to put “it” out there. Stay strong & be well!

  4. I am so grateful for surviving cancer 19 years ago, it helps me accept and adjust to having MS. Being at my personal best in despair has given me a unique take on life.

  5. Hey Nicole,

    I just wanted to say hello and tank you for aother thought provoking article. We who have MS are a special bunch of folks and I hope that by God’s grace we will experience a special kind of pleasure and happiness when are bodies are restored in heaven! At least that’s my hope 🙂 In the mean time I continue to do everything I can to get/keep the body I have in shape and moving!!! So as an update, I’ve lost 135 lbs since August 2012 which includes 100 since having bariatric surgery in February. I also ran (and walked) in my first 5k on Saturday and yes, there was pain that afternoon but it subsided by Sunday night and the pleasure of the experience was, as they say, priceless.

    All of that to say that it is my mind that I have some control over when it comes to my disease yet it is prudence that must be exercised when making decisions as to any response to the physical symptoms. Is every day, and every decision easy? Heck no, but I refuse to let my MS dictate my daily life. Hang in there and keep the articles comming…we can never give up!

    Your friend,
    Tim

  6. I know all to well what you’re saying. I have what I call blue days when it seems like there’s not a thing on the face of this earth right. I dwell on all the used things I used to be. Thank you for putting into words what so many of us think.

  7. Sadly, there is another alternative. We may only know pain and suffering because we have lived so well. Our suffering is only relative to how we have lived. I know my kids go through some horrendous medical ordeals with relative complacency. This is life as they know it. Nasty tasting meds and uncomfortable doctor trips jsut come with the territory.

    It’s all perspective. I tell myself all the time how lucky I am. I have 3 wonderful children modeling how to be brave in face of their medical conditions. I have a beautiful wife who happens to be a nurse, and I have food and shelter. There are so many who would put up with my “pains” if they could only switch places. Tough luck for them because I’m not trading!

  8. Nicole, I absolutely can relate to what you wrote. I make plans and MS says, no you can’t go. Then, I have to see the look on the other persons face when I cancel.
    It will be my 10th year with MS in November. When I think about the future it’s full of questions. How will I be in 10 more years, will my body still be functional, etc.
    I have to stop myself from all the questions and deal with the present, that’s the only way I can stay positive. Again, thank you so much for giving us a platform to vent and relate to others.
    Jana

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