“Pain is never permanent.” ~ Saint Teresa of Avila
Pain is something we can all relate to. It’s not always physical. Sometimes it’s emotional. And more often than I like to admit, that’s where I seem to get stalled. I get stuck in my pain. Trapped in the spider webs of my psyche.
I wish you could see my pain. It’s a crazy sick in my head. It’s hard to describe. But when I close my eyes it becomes frighteningly vivid. Sometimes so loud, it crushes the eardrums of anyone within its range. And other times, it’s low like a faint echo in the distance. But close enough where I can feel it living inside of me. Hibernating in a carved out space within the darkest corner of my core. Where it sits and waits to release just enough venom to remind me of its presence.
Most days I am extremely content. But those times when the pain decides to strike, I can feel it spilling all over me. Running through my mind. Working its way down my spine. Harassing my entire body, from my head to my toes.
It constantly rotates around me like the earth circles the sun. Continually changing the trajectory of my life. Orbiting my spirit. Blazing a fire that burns doubts of my abilities into my subconscious. Touching every vulnerable part of my being as my mind is pushed around until it’s trapped in a corner and attacked. Leaving me to wonder. Why me? What have I done to deserve this?
The power it has over me is undeniable. Its influence causes me to compare myself to others. I keep wondering, “Where’s my wishing well? When are the fairy tales my mother would recite to me as a child going to come true?” I don’t remember Cinderella having a debilitating chronic disease. Snow White didn’t have to use a cane. Sleeping Beauty never went to the doctor just to be told, “Sorry, there is nothing more we can do for you”.
The pain is so repugnant it makes my knees tremble. So demoralizing, it feels like the devil is spitting in my face. So fearful to awaken it, I tiptoe around life issues like a ballerina toe-walking on a bed filled with razor blades.
At its worst, it strikes me over and over with blows to the gut while reverberating in my head like the saddest Sade song stuck on repeat. Turning my existence into some twisted fiction novel, strangers download to their smart phones and read as amusement during their lunch break.
Its manipulation slowly alters the life course I initially designed for myself as an adolescent. And every time I think I have shaken free, it grips my skin and hangs on to strike again. Bashing my mind with a persistent indescribable throbbing. Making me wish for that day when the sun and earth collide and burst into a magnificent new beginning where there is no more fear. Where there is no more pain. Where there is no more sick in my head.
Originally appeared in MultipleSclerosis.net
I tell my self – it will pass . The pain will ease , I will get Thur it . Closing my eyes , to opening them again to view the clock / Congratulating myself ! That 7 minutes have
Passed ! Chanting in my head – I’m a fighter, A survivor.
My new “ normal “ is now ~ choosing to be Happy / Great full every day ! Making my environment\home adapt to what I need !!! Your not alone – for at times that is what makes me cry – the isolation. Others not understanding how every day things are a struggle at times .
Keep writing ! Keep fighting ! Won’t win every day – against the pain and fatigue . So enjoy your beautiful days – how You want ! Read , relax and be Kind to yourself !!!
This is so beautifully written, and it happens to be exactly how I’m feeling right now. I’ve been reading your blog for about a year now, and you always amaze me. Thank you.
Take care, ‘pain in the head’ is the worst kind!’ We don’t know why we suffer, but it happens anyway. Like St. Teresa of Avila, We need to pray for help and to know that “we are the beloved children of God”. People care too, tho’ sometimes we can’t see it. We are not alone!